Have never realised i’m abnormal before now.

Always had Mild Visual Snow - I get mild//moderate? static all over my vision top left to bottom right, i get the blue-sky sprites in daylight and see floaters looking at the sky, extremely light sensitive, Lights are starburst, I have ghosting too, not sure if that’s vss or astigmatism… or both. astigmatism with my brain realising the effect. static more visible at night but always visible. i also get these weird colourful clouds/waves with my eyes shut like blotches or colours, green/purplish. static is mostly red but i see lesser extent green and purple?

Can someone explain what vision without static is like to me? it sounds scary to close my eyes and NOT see static

Hi,

I'm in the UK and have a doctors appointment tomorrow, I am wondering what I should say in order to prioritise getting help.

I have had a brain MRI with normal results, a normal nerve conduction test and a normal eye exam. I have seen a neurologist and been diagnosed with Functional Neurological Disorder and Migraine with Aura, but I have many symptoms that don't necessarily fit with FND and cross over into Visual Snow Syndrome. A doctor previously got me to try Propranolol, and Duloxetine in the past, this had no effect on any of my symptoms, the doctor previously stated we could try Amitriptyline if the propranolol doesn't help and I think this is what she will suggest tomorrow.

I suffer with a wide range of symptoms that I have had for around two years, some of them come and go, but my visual symptoms have so far progressively deteriorated.

Visual Symptoms:

Palinopsia

Blue Field Entopic Phenomenon

Photosensitivity

Hyper awareness of floaters

Able to see the vein structure inside my eyes, when in a bright environment, usually in time with my heart beating.

Greyish "ripples" that cross my whole visual field when I move my eyes and then fade away (This is by far my most debilitating and intrusive symptom.)

Head Symptoms:

Headache/migraine that builds in intensity the longer I am in a bright environment.

Body Symptoms:

Muscle Twitching in almost every muscle group, but no weakness.

Muscle Tightness, especially in calves.

Electric Shock sensations

Tingling and numbness

It has gotten to the point now where I struggle to leave the house for anything longer than a short while, I may have to quit my job as driving is becoming increasingly uncomfortable and painful as it causes migraines due to being in a bright environment. I held on to hope for a long time that it may get better but it has so far only got worse and I don't know where else to turn. Thanks.

Ciao a tutti,

Non sopporto piu le mie afterimage.

Avete consigli su come migliorarle o fare sparire?

Qualcuno ci è riuscito?

Grazie in anticipo

Hello! I’m a diagnosed visual snow lifer with chronic migraine— I recently stumbled across this tool on r/PWM_Sensitive. After turning on, everything felt light, clear, and sharp.

Turn it on and then wait about 5 minutes for your eyes to adjust.

Stillcolor for Apple Silicon Macs:
https://github.com/aiaf/Stillcolor

Am I missing something or was this year the year when we honestly didn't get almost any new information/research what comes to vss?

I'm here hoping that I have just missed something and not that nothing happened at all this year.

Edit // Wait no, did we get the ICD code this year?

To keep this short -sudden ghosting when looking at black text on white background -worsening astigmatism or starbursting at night and especially with distances -eye pain -glare and rainbow glare -downward streaking when I blink (no explanations for this anywhere??)

Could this be VSS? Or something cornea related and how can I decrease it as its the only thing I can notice.

When i was 12 it begin i was Adderall all te day on high dose everytime i close my eyes i saw black cube and white spot. Now age 20 i see everything moving around me wall and phone icon and of course visual snow in rainbow way my mind is going crazy every day it has got alot worse every time my heart beating like on speed every hour i see horror when i close my eyes and rainbows every what to do now

They really worry me and seems more intense lately

Note that I’m pretty sure I have VSS due to other symptoms (which are better at the moment). This episode started after getting glasses after being without them for a while, seems to happen most often when moving head and looking left, usually in a darker room. Have had it happen before a few years ago similarly (tho red in that case). Optometrist for glasses fitting said eyes looked fine when I went a few months back.

Can’t say I’ve caught all of them, good chance there’s some I’ve missed so it may be incorrect.

Hi everyone!

I’m 26 male in UK and had migraines my entire life:

I’ve been suffering from headaches/migraines pretty much every single day for months, possibly even longer at this point. I’ve been to the doctors countless times, but I feel like I’m getting nowhere. I’m starting to think I need a referral to a neurologist or migraine specialist.

I also have Visual Snow Syndrome (VSS), which seems to get significantly worse when my headaches are bad.
I’ve recently started keeping a migraine diary because I’m struggling with how constant everything has become.

**13/11/2026**
Woke up with a headache.
Started experiencing phantom smells in the evening (smelling things that aren’t actually there).
Strange sensation like cold water running down the side of my head.
Dizziness.
Nausea.
Vertigo

**14/11/2026**
Woke up with another bad headache that keeps moving around different parts of my head.
Visual snow is particularly bad. For example, when I look at something on the wall and look away, I can still see its outline for a while afterwards.
Frequent phantom smells, which seem to coincide with pain in my head.
Dizziness.
Headache has moved towards the front/left side of my head.
Keep seeing a tiny white/silver dot when I blink.
My right eye keeps twitching.
I’m currently taking propranolol as a preventative.
I’m honestly exhausted by it all. It’s affecting my day-to-day life, and I feel like I’m constantly dealing with some combination of headaches, dizziness or visual disturbances.

**I wanted to ask:**
Does anyone else experience phantom smells with their migraines, particularly alongside head pain?
Has anyone experienced the sensation of cold water running down their head?
Does anyone with VSS find that their symptoms get significantly worse during migraines?
Has anyone had daily migraines for months and eventually found a treatment that helped?
For those in the UK, how difficult was it to get referred to a neurologist through the NHS?
I’m not looking for a diagnosis, just hoping to hear from people who’ve experienced anything similar and what eventually helped them.
Thanks so much to anyone who takes the time to read or reply! ❤️

Hi i’m 19 years old and i have VSS,

i had a very bad anxiety attack back in august of this year and since then my Vss symptoms really flared up snd my nervous system really hasnt went down to its baseline since this episode, im not going to lie tho my symptoms have improved alot and everyday is super manageable but i had a quick question,

does anyone else experience this ”optical effect“ when looking at doors/ blinds / striped shirts / closely spaced dark lines / escalator stairs, and is it a common occurrence or is this some thing more serious my eyes are healthy , i experience no headaches, no sleep deprivation literally just anxiety and i over analyze a lot,

Heres an example wha i talk about it’s also more prominent in my left eye then it is my right , and no these are not floaters, and i usually only get this when it’s very close together spaced lines like a striped t shirt. but with doors it’s not super common. it’s very hard to explain too.

when i look at something completely straight i see everything fine. But when i turn my head left/right and keep my eyes straight 1 spot turns more yellow depending on how much i turn my head. The spot the turns yellow is in a different place depending on if my head was turn left or right. Does anyone know why this is happening?

Hi um​ I'm pretty sure I have visual snow syndrome​ and was just wondering if its even worth getting a proper diagnosis since I'm getting by life just fine since it doesn't cause me much harm, (minus derealization and such but that might stem from disorders I have)​ like its not super bad compared to others, for me it's just like if you'd overlay tv static​​​ and decreased the opacity to 10%​ so I feel like I shouldn't even see a doctor about it (I also think I have mild/mid astigmatism if that's matters since I've heard astigmatism can be a sign of visual snow) (sorry ik this is a stupid question)​​​​​​

I had 2 days of it and they changed imidiatly but i get worsening of VS. It was 2 months ago and mehh since then its just worse. Anybody got better with time? any supplements that helped you? (I already had visual snow)

Whenever I move my eyes in a sufficiently bright environment, I get this grey "wave" or "ripple" that moves across my entire visual field at the speed my eyes move before fading away and becoming invisible until I move my eyes again. This is by far the most debilitating symptom I have and I have nearly every VSS Symptom you could get, aside from the static.

It is NOT a normal floater, I have those too, It is a wave that crosses my whole visual field and then becomes invisble again when looking straight forward and not moving my eyes left or right.

I see it constantly, flickering spots that goes on and off constantly in fixed visual field areas (dominantly on right field of vision, near the normal blind spot and other places) also on left side.

Any medication to sort this?

i am 100% certain SSRI triggered this.

No. 9 - Deeply Neurological
Read “There’s Nothing Here” on Webtoon

All kofi donations go towards building an comfortable and accessible art office that accommodates my disability

Art commissions open on VGen

I’ve recently been actually diagnosed with Visual Snow Syndrome and I hate this symptom baddddd does anyone else ever see it? It’s like when I blink it stays in my vision for say about 1 second and vanishes. Also I see lights trail across my eyes and when I open them it’s like flashing

Is there anyone Brazilian who owns this?

Do they for anyone but not cataracts?

I have like a net of lights like strings that move around I see. Then I also have (I've been calling it palinopsia) the same light, like when you look at a flash, around any object I see that emits light. It's especially bad when I move my eyes because then the "aura of the object" moves.
I had a migraine years ago with aura but it was more like electricity lines on my eyes and I couldn't do anything plus I had a strong headache afterwards.
This is going long on since May now with good and bad days.

Hi guys, I’m wondering what do you guys with VSS do when you face situations in which you get hurt or sick and you need to take pain killers, antibiotics or other medications. Do you avoid taking them so that your VSS is not impacted? I’m just concerned about having the need to take medications if I ever get hurt or sick and then not sure what to do. What about local anesthesia at the dentist?
For the people who recovered, do you avoid medications ? If not, using them make visual disturbances come back?
Thanks

Does anyone else have laggy or slow motion kind of vision? Not just on screen but real life? People talking, it looks laggy. People's movements. When I walk I feel like everything in my peripheral is dragging.