I just want to come on here and say how helpful I’ve recently found ChatGPT honestly it’s really helped in tying loose ends up, evaluating blood work, symptoms, and just generally making sense of all my HITT issues, I’ve always had it in the back of my mind but it’s only recently where I’ve started to use it to my advantage specifically when it comes to preparing for doctors and hospital appointments, generally GPs and some doctors are just useless when it comes to anything HITT & MCAS etc but was so relieved recently when I had ChatGPT analyse my recently blood work and it made thorough suggestions for follow ups that my doctor would’ve never thought of. When I recently took the suggestions to an appointment the it went well and the doctor ordered further testing which was recommended. I left the appointment happier than I ever had in the past. So in a short time it’s enabled me to have a clear direction in order to find my possible root cause and suggest which direction to take based on everything. I’ve had mind blown experiences when it’s evaluated everything and put it in an easy to understand format. So helpful and don’t know why I didn’t think to use it before!! It’s given me more answers than any doctor has in over 5 years.

Anyone struggling with finding a root cause or just finding a direction to take I highly recommend getting an analysis of your tests and most importantly get recommendations on what further testing you can request based off your last results etc

Obviously always do your own research and confirm any treatments or supplements with your doctor!

Thought I’d share as I’ve just breakthroughs all with minutes as apposed to aimlessly trying to figure everything out alone as GP and doctors have been unhelpful.

Apparently sex organs have a lot of mast cells and friction releases histamine.

If you dont know what edging is, it is stimulating your penis or vagina for up to hours in worst case scenarios.

I am M and i believe edging is worse for men because of how the penis works - erection is modulated by histamine, its essentialy a baloon filled with blood and all the vessels inside are histamine controlled. More so, the continous friction generates its own histamine.

I may be a fringe case because i was edging for so long but i believe even shorter sessions can be bad. I had severe scalp itching as i was doing it and especially after and many other symptoms.

These symptoms never happened after real piv sex. Only jerking off or bed humping.

I also had premature ejaculation (only during sex), maybe the reason i didnt get symptoms. And i also lost my ability to feel sexual pleasure.

Found an old reddit post talking about this https://www.reddit.com/r/NoFap/comments/3uqjbx/pmo_and_histamine_this_might_change_your_life/

And there are many others like this.

edit:

https://www.bionity.com/en/encyclopedia/Histamine.html

>Research has shown that histamine is released as part of the human orgasm from mast cells in the genitals. If this response is lacking this may be a sign of histapenia (histamine deficiency). In such cases, a doctor may prescribe diet supplements with folic acid and niacin (which used in conjunction can increase blood histamine levels and histamine release), or L-histidine. Conversely, men with high histamine levels may suffer from premature ejaculations.

Curious if this makes sense to you and can relate

Who else has had their life destroyed by COVID-19 and, eventually, vaccines? I've developed histamine poisoning and allergies to everything. I don't know what to do anymore. Sometimes in my intestines, sometimes in my stomach, sometimes in my joints, sometimes in my skin, sometimes dizziness, sometimes hormones, sleep, energy, environment—everything. I've been going through this for three years. Please help.

Has anyone improved their histamine issues on carnivore? Curious because I’m hoping that if I were to do carnivore, it would give my system a rest and time to heal, given that the diet removes all potential gut irritants (theoretically).

I haven't really gotten into trying brain training/proper meditation yet, due to exams and addiction to my phone. But I've seen a lot of people talk bad about brain retraining regarding HIT. I understand that HIT is very much a biological thing with physical manifestations that may need to be medicated (as for myself as well.) But maybe if you tried believing you can actually shift this neurotransmitter in your brain, even just a tiny bit, to find some relief - maybe it would work. Because I'm sure it CAN work.

Okay, a bit wordy but hang with me here. And/or if you have any insight/thoughts please share bc I swear it’s such a rabbit hole learning about all this stuff.

So maybe 10 to 13 years ago now, I was hit with EBV (Epstein Barr Virus). Shit rocked me. I got mono, was lethargic for months. Nothing really shook it and as a college student at the time I just kinda powered thru it to graduate and hopefully get a job. But was tired all the time, and coincidentally I all of sudden had issues with food.

I did have severe migraines growing up as a kid but more on that later.

Fast forward to last year 2024, I feel like my baseline was 60% energy, always needed to sleep, especially after working out. I was still fit but just looked bloated. Anyways, went carnivore for 8 months. Wham, I got an intense amount of energy back, like 90% base line run rate. I didn’t have weird asthmatic conditions anymore, I felt clearer in my mind, I could lift heavier and play sports longer. It was great. I was doing lion diet so beef, butter, eggs, water. Nothing else. Lost weight too but never my intention.

After 8 months, I dove down the r/rawprimal rabbit hole following Aajonus Vonderplanitz. I still think he is probably right about MOST things and uncooked vs cooked meat but the diet is so hard for longevity. At least on carnivore I know what I meal I was going to make at all times. But raw dairy (raw butter, raw milk) and raw eggs as well as some raw meat has made me feel even better than the 90% base line I felt on lions diet carnivore. Probably 94%-95% better.

But like I said r/rawprimal is so extreme I never was tempted or cheated on carnivore but it’s so difficult I caught myself cheating often.

Anyways… fast fwd to why I’m posting on r/HistamineIntolerance. I went to a seafood buffet this weekend and mainly only ate crab, lobster, shrimp. The past 2 days my stomach BALLOONED out and I’ve never been in so much pain. I’ve never had an issue with shellfish. The only other time this ever happened was after eating a whole pineapple a few months ago (never had issue with pineapple before).

My gf and I narrowed it down to histamine. And here I was thinking my gut was healing from carnivore, eating high fat, raw dairy/eggs, etc. was culprit to healing my gut and bringing good bacteria into my microbiome. And wham 1 single seafood buffet and I was nearly immobilized yesterday… so it made me realize (after some research) wow… almost all high histamine foods really do affect me. Especially avocados and alcohol (my hangovers felt 80% similar to the effects of the seafood buffet).

That’s when I started realizing I get bloated ALL the time after certain foods. And maybe histamines are the cause. I also believe EBV, antibiotics (we believe my migraines as a child were result of given antibiotics when I was an infant, I’ve always been sensitive to carbs), gut-brain axis, no seed oils, lack of bacteria in the colon being fed bc small intestinal bacteria is eating all the food, SIBO, microbiome, MCAS, ketosis (low carb, high fat), and histamine intolerance are all related. I know all our bodies are different but I just think there’s gotta be SOMETHING in there.

So idk… if you read this far.. thank you. I’m trying to figure it out. I’m back on a carnivore diet bc that’s when my body is LEAST inflamed. But I can’t for the life of me figure out how to fix? Is it truly just eat low histamine for ever. Or is there something I’m missing to fix it all? Ex: fix the leaky gut or fix SIBO and my problems will get better? Idk.

All I do know is I will start incorporating foods high in DAO to counteract histamines goin fwds (kidney and liver). Thanks for reading, there’s gotta be a solution. Please let me know if anyone has figured it out yet

Edit 1: when going carnivore you will obviously stop eating seed oils. And for this reason I NEVER get sunburned anymore… however I noticed when I’ve had a reaction to foods high in histamines… WHAM back to being easy burned by the sun. THERE’S GOTTA BE A CONNECTION insert Charlie Kelly meme

Edit 2: I do take ibuprofen from time to time. It seems to make my body affected for at least 1 to 2 weeks after the acute pain has subsided. For ex: if I were to take 3 ibuprofen after being hungover (headache) it seems like body will be more sensitive to EVERYTHING. Just searched “ibuprofen” on r/histamineintolerance looks like I’m not the only one and ibuprofen causes anaphylaxis… plot thickens

I honestly don't know if I have histamine intolerance or MCAS. I've read so much and I've come across some people saying that histamine intoletance isn't real because no human body can be intolerant to histamine...therefore, it's MCAS every time. Which honestly sounds worse. Is this right??

I've been on HRT for a year and rather quickly my HIT and allergies worsened over the past 3 months. The past 2 weeks have been exponentially worse.

My intolerance and allergies have been in the hundreds (you name it, i'm intolerant), but most of them have been so mild that i've been able to live without antihistamines or other meds since forever. I've been able to eat high histamine foods without any noticeable issues.... until now. And my dust allergy has never been a problem, until now.

I am strongly suspecting a hormone imbalance to be the issue.

I am wondering if any other transfemmes here have had success with progesterone?

https://youtu.be/Uz22bw-dTL8?feature=shared

I have to say this is interesting. This would say it’s all stress related I guess.

He thinks it’s a nervous system thing.

Is sunflower oil safe ?

I have managed to connect the existence of neurodevelopmental disorders with histamine intolerance, or at least histamine-production.

I will try to explain how I got to the conclusion,

But I do not have the answer of WHY EXACTLY this is the case, but I want to help all of you to better your ADHD and symptoms.

To «cure»your ADHD (adhd is not curable by my hypothesis, but you can better the sumptoms as my hypothesis is that histamines is what affects your symptoms)

You need to to these two things:

You need to stay away from Histamines.

You also need to start a low histamine diet, preferably take anti-histamines and probiotics as well

That's it. This will better your symptoms.

My hypothesis is based on connections I have made diving into my own experiences, and is proven in newer studies

ADHD and other neurodevelopmental disorders are caused by gut bacteria/ gut flora, and it has as now been proven that Antibiotics disrupt the gut flora of newborn up to age 2, and that kids who got antibiotic during that age has a much higher chance of developing neurological disorders

What happens in us is that our body doesn't have a properly working immune system/ response, and when our bodies produce histamine our immune system causes our symptoms to be worse as the immune system is trying to get rid of the histamine

So to better the symptoms we need to stay away from histamines, this is because when we were born our gut microbes didn't go through the phase of making a good immune system, so we become dependent on getting antihistamines and probiotics to fight the histamine from external sources

Because we have been living parts of our first two years without this essential thing (probiotics/immune system/antihistamines) our brains get damaged more the longer we were without these things

My theory is that adhd, autism, bipolar, Asperger and such is all a gradient of the same microbiom problem, but depemdant on how long you lived your first two years without it

I have ADHD, Dermatillomania (skin picking), Seborrhoeic dermatitis (seb derm), Stress and possibly Small intestinal bacterial overgrowth (SIBO)

These conditions, and probably many other conditions that I don't personally have but you might, are all affected by histamine/gut flora

I can probably try to deep dive a bit in the comments, but writing about these scientific things are a bit hard for me as I don't have English as my mother language

Hey guys just trying to figure some things out. I've gained like 10 pounds in the last year and no matter what I do I can't seem to get it off I weigh the most I've weighed in 30 years. I'm normally around 1:20 and I'm like 131 right now. I am curious if it could be histamine intolerance? And I'm wondering if celery juice, red light therapy or coffee enemas help? Also a dao supplement. Thanks for your help.

I notice it

If so, did it help or not?

UPDATE: I got a new kettle, and now I’m basically fine with lukewarm warm water, just have some mild irritation in my throat (similar to the feeling of drinking something acidic—before it was the same type of feeling, but actually painful). Must have been a buildup of something in the old kettle.

I seem to be fine with club soda but wondering how you all hydrate.

Was going to try eating a scorpion, wanted to know if I would have anaphylaxis or not. Was also wondering about mealworms, millipede and silk moth. Obviously fresher is better from what I've heard. I've just been craving them lately.

I have only been experiencing symptoms for a little over a year. I know many of you have had these issues since before 2019.

I’m just curious if there is any correlation (not proving causation) with vaccines for any of you?

Not trying to sound crazy, just curious.

I developed MCAS and histamine intolerance after covid vaccines. I had similar allergy issues when I was baby. I started to think that could be caused of vaccination. I don’t have all of above listed, but it seems they are linked to allergy.

Why these issues come after vaccines? Could someone explain?

Thank you.

Have hi, but never took it seriously. Wasn’t terrible but not great. Now need to have a meal my mom can prepare and leave outside, likely infected a few days ago, Test back in a couple days.

Any ideas for real simple meal I can eat daily untul I’m down? I’ll try and build a healthy diet later, but need an emergency meal, Covid def flaring my hi.

What histamine intolerance apps do you actually use?

I wanna use apps to help manage my food intolerances and there seem to be tons of options now.

Here's what I've found so far:

• Fig

• Foodient

• Lunchly

• ScanFood

• Hits DB

• Intoler

• Intolerances

• HistApp

• Allicaneat

• Frag Ingrid

Which ones do you use? What works best for specific intolerances? I'm especially interested in apps that handle multiple intolerances well, not just single-issue ones.

Also, any apps I'm missing that should be on this list?

Guys, I had about 15 tests done, things are bad, and I need to talk to someone who's been through something similar. I had a virus 3 weeks ago and, out of stubbornness, I trained hard while I was sick. The consequences have now arrived and it's devastating: I've been in continuous decline for 12 days. My current state (Real and Severe): Incapacitating Exhaustion: It's a tiredness that's hard to explain. My battery is completely drained and it feels like it won't recharge no matter what. I feel like my body doesn't have the strength for the basics. Balloon Head and Pressure: Any minimal effort (physical or mental) makes my head feel like it's going to explode, accompanied by a lot of dizziness. Total Insomnia: Even in this state of extreme exhaustion, my body doesn't shut down. It's a severe difficulty sleeping that's destroying me. Hypersensitivity: My heart races for anything, my body is sensitive to everything, I've completely lost my appetite. PLEASE: I'm incredibly anxious and need to talk to someone who's been through this level of severity and recovered 100%. I want to hear real stories from people who returned to normal life after this 'system blackout'. Please, only positive and encouraging accounts. How did you get through this? What helped you recharge your batteries? What should I do? What can I take? Do you know someone who could help me a lot? What medications can I take?

I really need to talk, I'm having strange thoughts I've never had before.... Thanks!

Hey,

I got a lot worse after mold exposure with my food sensitivities as well histamine but at the same time I started carnivore diet because my gut was a mess.

I do not know which contributed to what but I know that I see a lot of people that have issues with histamine after they come to carnivore diet. They are way better after adding some vegetables and fruits back in…

What is your experience and what are you thinking is happening?

Has anyone here had success healing severe histamine intolerance and leaky gut with a carnivore diet? I’d love to hear your experiences - especially if you noticed improvements in symptoms, and whether you added any supplements to support the process.